Have your say!
Would you like to share your views to help improve programs and services for patients, or help researchers gain a better understanding of the challenges of living with kidney disease?
Our Kidney Community Contact List is a national and confidential record of people willing to be contacted for their feedback and action on topics of concern to people living with kidney disease. Join our contact list and we will contact you as opportunities arise.
Determining the Research Priorities of Canadian Kidney Cancer Patients, Caregivers and Clinicians: A Priority Setting Partnership for Kidney Cancer
Patients, caregivers and healthcare professionals should have a voice in determining the research priorities of this disease. But, healthcare research often neglects these voices. This project brings together this group to collaboratively establish the top 10 research priorities for the diagnosis and management of kidney cancer.
The survey takes approximately 10 to 20 minutes to complete. We ask you to list any questions you have about diagnosis, prognosis, treatment, and anything else that you think should be studied through research. The survey will be open until November 30, 2014.
This study is being conducted by the Kidney Cancer Research Network of Canada in a partnership with the James Lind Alliance (JLA) and with support from the Canadian Institute of Health Research (CIHR), Kidney Cancer Canada (KCC) and the Kidney Foundation of Canada (KFofC).