Have your say!
Would you like to share your views to help improve programs and services for patients, or help researchers gain a better understanding of the challenges of living with kidney disease?
Our Kidney Community Contact List is a national and confidential record of people willing to be contacted for their feedback and action on topics of concern to people living with kidney disease. Join our contact list and we will contact you as opportunities arise.
Priority Setting Survey in Donation and Transplantation
We are interested in learning your views on what topics should be researched in transplantation and donation. Your experiences as a patient, caregiver, researcher and or healthcare professional will help us to identify the top research priorities in transplantation and donation within the Canadian National Transplant Research Program (CNTRP) in order to improve the treatment and the quality of life of transplanted patients and patients waiting for a transplant.
Our research team has created a questionnaire to address this subject. To answer these questions, we ask you to participate in our Online survey that will take approximately 10 minutes to complete. To complete and learn more about the survey, please visit:
We thank you for your participation. Your responses are essential to foster a meaningful partnership and collaboration with the CNTRP.
Health, Coping and Quality of Life for People with Chronic Kidney Disease and Their Family Members
Are you currently on hemodialysis or peritoneal dialysis? Have you received a kidney transplant? Are you a family member of someone on hemodialysis/peritoneal dialysis or living with a kidney transplant?
If you answered “yes” to one of these questions, would you be willing to tell us about your quality of life? We are interested in having you participate in a study being conducted by faculty members and a postdoctoral fellow from the University of Alberta, Faculty of Nursing.
The purpose of this national study is:
- to explore how symptoms affect quality of life for people living with chronic kidney disease (CKD), transplants, and family members of those with CKD/transplants; and
- to explore how approaches to coping affect the impact of symptoms, and quality of life for people with CKD/transplants and their families.
You will be asked to complete a survey online. It will take you approximately 30 minutes of your time. If you complete the full survey, you will be entered to win an iPad mini! You will have a 1 in 1000 chance to win. Findings of this study will be made available through the Kidney Foundation of Canada website.
If you are interested, please visit www.kidneysurvey.ca
Clinical Trial Studying New Non-surgical Vascular Access Method for Hemodialysis
The Novel Endovascular Access Trial (NEAT) is evaluating the safety and efficacy of the FLEX endoAVF System from TVA Medical, a device that creates an arteriovenous fistula (AVF) in a percutaneous procedure, without general anesthesia or surgery. In the procedure, two thin, flexible magnetic catheters are inserted in an artery and vein in the arm. A small burst of radiofrequency energy is used to connect the artery and vein to create the fistula, and the catheters are removed. The procedure is designed to enable patients to use their AVF for hemodialysis within one to two months.
Five hospitals in Canada are enrolling up to 70 patients in total who will be followed for 12 months in the NEAT clinical trial. The centers include St. Paul’s Hospital in Vancouver; Montreal University Health Centre (CHUM) in Montreal; Toronto General Hospital in Toronto; Lakeridge Health in Oshawa, Ontario; and Victoria Hospital in London, Ontario. NEAT study participants must be willing to travel to one of the trial sites on a monthly basis for one year for hemodialysis and follow-up appointments.
Patients with end-stage (stage IV or V) renal disease interested to enroll in this trial should read this Patient FAQ and talk to their nephrologist before contacting the participating hospital in their region.