Have your say!

Would you like to share your views to help improve programs and services for patients, or help researchers gain a better understanding of the challenges of living with kidney disease?

Current opportunities


Safety, Acceptance, Fairness, and Equality (SAFE Project):
Acceptable Risk and Donor Selection

The SAFE project is a study about attitudes towards blood donation funded by the Canadian Blood Services and carried out by Dr. Blaine Ditto at McGill University. The researchers are interested in gaining insight on how people would react to possible changes in policy that might loosen restrictions on receiving blood from men-who-have-sex-with-men.

Giving your opinion by completing the questionnaire linked below would be very useful in giving the researchers an idea of the different aspects that influence attitudes.

Click here to complete the questionnaire

Quality Measurement in Kidney Transplantation

Researchers at The Ottawa Hospital Research Institute are looking for volunteers for an online survey about measuring quality of care in kidney transplantation.

You are welcome to participate in this study if you are over the age of 18, are a resident of Canada, and fall into one of the following groups:

  1. Patients with chronic kidney disease. This includes people on dialysis, people waiting for a kidney transplant, or people who have received a kidney transplant.
  2. Informal caregivers for a family member or close friend who qualifies as a patient.
  3. Professionals (physicians, surgeons, nurses, and allied health professionals) who work with patients: with chronic kidney disease; waiting for a kidney transplant; who have received a kidney transplant.

This survey has three rounds. In each round you will be asked how important you think each measure is for determining quality of care. You will also be allowed to provide comments and suggest additional quality measurements. Each round will take between 10 to 30 minutes to complete.

Learn more about the survey or register.

Join the international SONG-PKD Delphi Panel!

Are you a patient, caregiver or health professional? Join the international Standardised Outcomes in Nephrology Initiative – Polycystic Kidney Disease (SONG-PKD) Delphi panel and have your say on what outcomes should be included in research in autosomal dominant PKD.

In Round 1, you will be asked to rate the importance of 41 outcomes. This will be followed by a second round, in which you will see a summary of the group results. Learn more.

What Do You Think About Exercise During Hemodialysis?

Are you at least 18 years old and do you live in Ontario? Are you currently on hemodialysis? If so, The Ottawa Hospital Research Institute wants to know what you think about exercise during hemodialysis.

The Ottawa Hospital Research Institute is planning an exercise program for people on hemodialysis who are cleared to exercise by their kidney doctor. It wants to hear from you about what you think about this idea so that it can plan its program with your point of view in mind.

If you, or someone you know, is currently on hemodialysis and can spare a few minutes for a short chat (45 minutes) by phone or in person, The Ottawa Hospital Research Institute would be delighted to hear your views – whether or not you are interested in exercising during dialysis!

In appreciation for your time, The Ottawa Hospital Research Institute can offer you a $20 gift card.

Please note that your views will be confidential and that taking part (or not) will not affect your care in any way.

To find out more about this study, please contact Gisell Castillo by email gicastillo@ohri.ca or by phone 613-737-8899 ext. 71578.

Atlantic Branch - 404-212 Queen Street, Fredericton NB E3B 1A8 - Tel.: (506) 453-0533 / 1-877-453-0533  
Charitable Registration Number: 107567398RR0001